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Added CCSVI Groups

As a minor restructoring of the website there is now a new page that includes CCSVI groups.  These groups typical goals are to push the development of CCSVI research into the spotlight with the hopes that it will decrease the time it takes to make the treatment available to everyone.

http://liberation-treatment.com/groups

If you know of any other groups that are not included feel free to submit additional information.  It is asked that you include at least:

  • Group name
  • Region of interest (ie City, State, Country etc)
  • Group’s goals if known
  • Contact info for the group (ie website)

Information can either be submitted as a comment below or by submitting through the contact page.

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March 7th, 2010
  • Judholland2002
    I have been diagnosed 9 years ago with relapsing remitting MS at the age of 51 and now progressing very rapidly. I have never taken any medication so the big phamacutical companies are not losing me but will be willing to travel anywhere.This finally makes sense and nobody else has come up with anything even though they all are experts!
  • There are several dutch intiatives: facebook, hyves and www:
    http://www.ccsvi.nl
    http://groups.to/ccsvinederland
    http://ccsvi.hyves.nl/
    Mostly the give information and ways to communicate
  • Ray Law
    My wife was diagnosed about 1 month ago I am very scared right now because things have progressed very fast hoping liberation will help us
  • Colleen Siebert
    I'm with Jennnifer-Ann. Where do I fly to and when can I go. Before I can't walk. By the time Canada tests it all were looking at atleast 5 years I bet. And I'm not willing to take the chance if I don't have to. It's my life we are gambling with!!
  • Good to see the views being spread here! Try to smile, laugh and enjoy each and every day! CCSVI needs to be explored further
  • Jennifer-Ann Sabey
    .how much is the procedure. where od i fly to get it done!! before i cant walk. diagnosed when i was 15. canada needs to offer it!!
  • msfitz44
    I hope Prashant is right, althouth I CAN'T wait the five to tens years for the studies to decide for me, I NEED CCSVI NOW, before I get worse, fifteen years is long enough to live with this unpredictable disease, never knowing what may happen from one day to the next or from hour to hour for that matter!
  • Prashant
    The said procedure is under research and the datas are being collected from all those patients who have undergone the procedure.

    In India, I know a doctor who has done this procedure on patients of MS.With time when further data are collected from such patients on their life style post this procedure , I am sure a lot of patient diagnosed with MS will get help
  • amrit
    i have been diagnosed with ms now 5 yrs in a wheelchair hoping this will help me
  • Dale Woolsey
    The surgery we're talking about is done on a continual basis whith heart problem people. The difference is arteries (blood supply lines) & the Liberation treatment involves opening the veins (return lines). If I have restricted veins after 25 years of MS I will anxiously wait to get them opened.
    Dale
  • Pedro Garcia
    Other msers that Ive spoken with tell me they DONT want to undergo surgery. But of course, we all want to be cured! So keep up the good work.
  • A hungarian CCSVI site, collecting and translating related information
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